As we celebrated our daughter, Natalie’s, first birthday, I stole a few moments to sit and reflect upon the past year and her birth. Natalie was diagnosed with Trisomy 21 (Down syndrome) at 20 weeks gestation. We were scared. Scared of the unknown. Scared of the medical complications associated with Trisomy 21. Scared of the diagnosis itself.
We grieved for the loss of the life we had envisioned for our little girl. We grieved for this perfect life we had imagined. We grieved for the loss of our Plan A. You know, the one where everything works out to be happily ever after.
Instead we found ourselves dealing with the upside-down, inside-out version where nothing goes as you had planned or envisioned.
While reflecting on Natalie’s birth and diagnosis I find myself asking: What were we worried about? I realize now that it was the unknown that we feared, not the Trisomy 21.
Throughout our journey, we were blessed by many members of Altru’s staff. They helped us navigate through a time when we briefly lost our bearings.
Words could never express our overwhelming gratitude. Words will never repay the kindness and professionalism that was bestowed upon us throughout my pregnancy and the birth of our beautiful Natalie.
A special thank you to…
- Dr. Andrea Lays for referring us to a perinatologist, guiding us through the initial diagnosis, providing resources and giving us peace of mind. She took amazing care of me. During the first few months of Natalie’s life, filled with a hectic schedule of doctor appointments, she checked in regularly. Yes, she wanted to hear about Natalie, but she also wanted to hear about my health and well-being. That meant a lot.
- Dr. Panda, Dr. Dwarakanath and Dr. Mallipaddi for their wonderful care of our little Natalie and for making our stay in the Neonatal Intensive Care Unit as pleasant as possible. They did an amazing job navigating all the medical complications that Natalie faced at birth and for that we are forever grateful!
- The NICU nurses for their delicate care of Natalie. They made us laugh, let us cry and assisted us in experiencing and preserving Natalie’s “firsts.”
- Jodie Storhaug, occupational therapist, for all your support, for finding what worked best for Natalie and teaching us new methods to help us care for our daughter. I still remember the mini celebration we had when she drank her first 60 milliliters and when Dr. Panda removed her feeding tube.
- Mandy Anderson, RN, for her comforting words and allowing us to see that this world we were about to enter wasn’t as scary as we’d imagined. It was actually magical, amazing and a privilege to experience.
- Tiffany Galletta at the pediatric lab, for being so gentle while poking Natalie’s tiny heals what seemed like every other day.
- Dr. Jennifer Peterson, who was so thorough. She took a tremendous amount of time caring for Natalie and guiding us through the first months of a different type of parenthood. Knowing Natalie was in great hands was such a relief. Dr. Peterson is not only an amazing doctor; she is an amazing, caring person. After experiencing her care, she will be my standard of measurement for medical care with my children.
Plan B, or life with Trisomy 21, was scary at the time of diagnosis. Today, we are so grateful our Plan A was thrown out the window. We wouldn’t change anything and wouldn’t have been fearful of Plan B had we known all along how amazing it would be.